18. Oct, 2018

End of Treatment

*Big sigh*


I think this was probably going to be one of the hardest posts that I was going to write, just wasn’t sure if I wanted to post it.

Amelia has finished Chemotherapy.

It all seems a bit surreal that 2 years, 4 months and 3 days ago our Baby Girl was diagnosed, and the worst two years of our lives were to be lived out. I look back and think about that time and it still hits me like a tonne of bricks, although the feeling in the pit of my stomach has somewhat lifted. I wish that feeling on no one.

I know we couldn’t have got this far without the love and support of our friends and family, our loved ones have been there for us since day one and we needed them, to have such support has got us this far and will get us further. Also, all our extended friends, I think I have read every message on social media and have seen every like, there has been hundreds, you are all fantastic and we thank you all from the bottom of our hearts.

A special mention must go to Tracyann’s Mum and Dad and my Mum. We would not have done this without you. You quite simply have been a rock to us, always there when we needed you. I can’t really find the words.

We have laughed, cried, done both at the same time, there are plenty of stories that I remember to get through the day (slept in cars (me) and falling of chairs due to shear exhaustion) and would do it all again in a heartbeat for our girl.

It’s called survival instinct, I didn’t know it existed until 2 and half years ago, but you find this inner strength that you function on, you must. There are two people that out do me on inner strength – Tracyann and Amelia.

Tracyann has shown strength that I didn’t know existed within a person, as a Mum she has been pushed to the brink, yet, she found the strength to not only save our daughters life through being a Mum but also found the time and the strength to be a Mum to Oliver – my heart goes out to my wife, you have simply been superhuman, thank you.

The NHS medical teams along with Tracyann saved our daughters life – it’s that simple. I don’t know how close we were to losing Amelia in the first two weeks in St George’s Hospital in London, but I know that we would not be in the position we are in now without them. I also know that we are fortunate, when I say that, I mean that there are a lot of other people/families out there that are far worse of than us. But the NHS are a fantastic asset to this country, especially at the level we were treated at, I can’t speak highly enough of Pinckney Ward at St George’s Hospital and The Oak Centre at The Royal Marsden.

Now, Amelia.

Well, what can I say about this most amazing little girl.

You just amaze me every single day, to see how you have come through this Amelia, is just a shear credit to you. I’m not sure how you have done it, I don’t think I could of.

You have life skills that can’t be taught, your strength and determination along with you sense of humour, kindness and shear bloody mindfulness will set you up for a wonderful life, and, my darling, you deserve it, every single second. You have every asset that you need to reach for the stars.

I’m so proud of you my sweetheart.

There is one little man that we need to mention, that’s our Oliver. You, my big man are everything to us three. You have made us laugh when we needed it, cuddled us when we needed it and you have been wise beyond your years. Like you sister (Mella) you have attributes that will take you far in life. We are immensely proud of you and you should be proud of yourself.

You are a superhero.

I can’t write much more of I’m being perfectly honest.


So, what’s next?

No more Chemotherapy.

There will be some bloods taken for the next couple of weeks, this is to ensure that the bloods have balanced out, the last 4 months have been balanced (Spot on Tuesdays) so this is no real concern.

Check ups for the first year will be every 6 weeks (alternating between QEQM and Royal Marsden), in the second year this goes to every 12 weeks. Third year extends out and handed over to a long-term plan.

In the meantime, were going to Enjoy Life, Love Living!

Once again, thank you all so much for everything you have done for us.

One final note, thank you for reading these bloody blogs! It’s funny I use to think why anyone would want to sit and write about stuff and put it on the web, well now I know. This has kept me sane in the last 2 and a bit year. It’s also been quite a success as I do post it in other areas and I have received messages from all over the country.

I will keep the blog open for now, well you want to see the America pics, don’t you?