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14. Dec, 2017

Well, it's been a while since our last post and quite alot has gone on!

Back on 2nd November Amelia had her consultant appointment at The Royal Marsden, we saw Dr Elsje and Amelia was fully examined - she was told she was the model patient, great news! The meds have increased in volume due to Amelia growing, basically body mass, this time the vincristine has affected her more than on previous occasions, what with the time of year we should have forcasted that there will be a visit into hospital.

That happend this week, off to Rainbow Ward at the QEQM, bloods taken and although Amelia had a virus there was no bacterial infection which was good news. The virus spread through the household, starting with Daddy - so he is getting the blame! I'm just pleased that the virus wasn't as servere as what I had had.

Amelia is still off school and still struggling, just goes to show what an increased dose of poison does to your body, she wants to go school so hopefully next week where she can join in the Xmas fun.

Fingers crossed we are all back to health ready for the weekend, some surporses are in store Big Grin

Thank you all for your support, I recived some messages on social media in the week, just out of the blue, some friends asking if I was ok, really nice touch, I don't see these people that often but have know them a long time, great to get a message of support, really means alot.

Well, that's about it really, we all wish you a wonderful Christmas - where has a year gone? Just imagine, this time next year we will be chemo free.

Merry Christmas and a Happy New Year, enjoy your family time.

Dan, Tracyann, Amelia and Oliver X

15. Oct, 2017

Well, theres only one subject making the headlines on the blog, that's The Sun's Who Cares Wins Awards 2017 that happend last Wednesday, apologies for all those people wanting a blog update! Just been really busy.

It was such an amazing day, although Amelia struggled due to the fact that she had chemo on the Monday, Vincristine, which really does knock her, but she as ever, battled through and won the attention of the celebrities! All the celebs were great with all the children and posed for photos and made a fuss of everyone if I'm honest, although Daddy nearly put his foot in it by calling Penny Lancaster - Rachel Hunter, that would of caused issues!

The day was quite amazing in the fact that there were so many stories portrayed that at times the whole room was still and you thought that you were the only one in the room, for example Stepping Hill hospital first responders to the Manchester bombing were there and won a special recognition award.

Another example were the parents of Jemima Layzell, who was the 13 year old girl who donated 8 of her organs after suddenly passing away with a brain aneurysm.

Remarkable people, I actually questioned why the hell were we there, to be perfectly honest. 

Again, it just brings home how lucky we are that we are in the position we are in, count every day as a blessing and live for today!

Half term is looming, I'm off work and we are planning a good one! Amelia and Oliver are both well, next consultant appointment is in November, the end of this month will be under a year left of treatment Big Grin

 

Love all of us x

 

4. Oct, 2017

So today, we celebrate Amelia's 8th birthday. We have had a very nice evening whilst stuffing our faces a Kasper's! Amelia had a great time. 

Amelia's main present this year was a pair of Heeleys, basically trainers with wheels on! As if we haven't spent enough time in hospitals we thought we would just increase our likelihood that we would end up in A&E! Anyway the practice is well underway....watch this space!

It's quite a month for birthday's as Mummy and Daddy both turn 40! Sad Less said about this the better!

Amelia continues to be well, weekly bloods being taken on a Tuesday does get her down slightly, but who wants to have to be accessed every week? The blood results are exactly where we want to be and the meds continue at 100%, roughly a year to go.

So next Wednesday we are invited to a very special event, something we are really proud to be part of. We are off to The Sun Health Awards - Who Cares Wins in London, as Amelia nominated the CLIC Sargent Community Nurses led by Suzie. The night will be hosted by Lorraine Kelly and Amelia has bought a new dress, she is really looking forward to it. Fingers crossed on the night, more information if your are interested can be found here -

 https://www.thesun.co.uk/living/3869934/the-suns-health-awards-launch-today-giving-you-the-chance-to-thank-the-tireless-nhs-staff-saving-lives-everyday/

As some of you know we were approached by CLIC Sargent some time ago to feature in some of their literature, so Amelia made her debut in the Year End Review below - 

http://www.clicsargent.org.uk/sites/files/clicsargent/CLIC%20Sargent%20Annual%20Review%202016-17.pdf

Exciting times for Amelia and she deserves some good limelight, thank you all for your continued support.

Love Dan, Tracyann, Amelia and Oliver x

2. Sep, 2017

We have had a great Summer Holiday, have done lots and the kids have enjoyed themselves, quite a contrast to last year.

Just goes to show how far we have come.

Amelia and Oliver go back to school on Wednesday and Tracyann goes back to work, so it's going to be very strange getting back into a full routine, the full routine since be diagnosed.

Amelia continues to have her bloods taken every week on a Tuesday, all spot on with no issues.

Her current medication has not changed - still chemo everyday, orally and every 4 weeks some vincristine (wipes her out) and steriods, so she is still having alot of meds, but as you all know she is handling it so very well.

She is one amazing girl, think I may have mentioned that!

It still amazes me how many people I see saying can you update the blog, I know by how many hits this page has that is was doing ok but we are so touched by everybodys support and love.

Well Oliver is off to football and Amelia starts back at ballet/modern/jazz etc. today (Saturday) so plenty to sort out.

Please remeber that September is Childhjood Cancer Awareness Month Thumbs up

Love 

Dan.

9. Aug, 2017

Tomorrow Amelia starts cycle 3 of Maintenance, only 5 to go after this, another milestone.

This means we only have another 6 scheduled visits to the Royal Marsden, doesn't sound much but this will take us to October 2018.

Amelia continues to do well, we all went on holiday for 2 weeks in Norfolk, staying in Great Yarmouth, we all had a great holiday with lots of fun. I think we all relaxed and forgot about everything for a while which was nice. Oh and Amelia now wants a boat as she conquered driving the boat on The Broads, she was a natural.

Not much to update you all on really, which I suppose is a good thing.

Dan x